This is one of the most forgotten areas but is the most critical in total patient care. The funding is very crucial to ensure patient lives and quality of life is the best that can be provided. Typically Myeloma has been an older person’s affliction and not a lot of media attention given to our Cancer. Now it has shown itself to have no age barriers and it can be extremely aggressive starting with bone lesions and afflicting many other organs. This cancer is currently incurable. The funds raised by SAMPS, mainly thru the Walk/Run each year, goes to support Myeloma Research conducted at the University of Calgary, division of Hematology and Hematological Malignancies in Calgary. Our research team of Dr. Nizar Bahlis, Associate Professor, Department of Medicine at the University of Calgary teams up with Dr. Paola Neri, Clinical Associate Professor, Division of Medical Oncology/Hematology. The Calgary research lab has the only Gnome sequencer dedicated to Myeloma Research in Canada. The U of C research lab is currently involved in 11 clinical trials. Through collaborative efforts in the Myeloma scientific field, the life expectancy has gone from 3 to 5 years to a better prognosis of 8 to 10 years. SAMPS , a Volunteer organization, supports the U of C Research team both financially and by providing information and support to anyone that expresses a need.
MYELOMA CANADA INFORMATION SUPPORT
Southern Alberta Myeloma Patient Society works in a collaborative effort with Myeloma Canada so that national exposure for our disease is provided. Myeloma Canada occasionally request that our members complete surveys. Patient and caregiver opinions are valuable in obtaining access to new drugs. SAMPS has no input into the surveys and provides this as a service to its members.